Round Earth Media

The underreported story of a deadly disease from our Next Gen reporter in Morocco

June 30, 2014

Mohamed removes his straw hat and is more active during overcast skies or in shady areas due to his xeroderma pigmentosum. Photo by Rachel Woolf.

Xeroderma Pigmentosum, XP, is a rare disease carried in 1 out of every 80   Moroccan’s DNA. It is only passed from parent to child when both parents carry  the recessive trait. Thus, in Morocco’s poor communities, where there is little opportunity for marriage outside the family, people are at higher risk to have, or at least pass on, the disease.

The disease is characterized by blistering and burning of the skin and eyes, along with various cancers. The National Cancer Institute reports a 10,000-fold increased risk of skin cancer for someone with XP and the National Institutes of Health (NIH) has found that non-melanoma skin cancer develops at a median age of nine. They are what Moroccans call Children of the Moon.

 

Today there are 800 Children of the Moon in Morocco. Due to poverty and poor access to health care, most of these children, teenagers and young adults will die before they reach 30.

Round Earth Media’s Francine Krieger reported the story of Morocco’s Children of the Moon for the Global Health Hub, read it HERE.

 

Round Earth media is a non-profit supporting young journalists around the world, enabling them to find and tell stories the world needs to hear.

Help support stories like this.